Who gets DBA?

DBA effects boys and girls equally. It has been reported in virtually all
ethnic groups. The estimated incidence is approximately 7 cases for every
million children born in the U.S.A. and Canada.

This information obtained from Children's Hospital Boston at
www.childrenshospital.org

From the Diamond Blackfan Anemia Registry of North America:
There are 420 patients in the registry, 349 are alive, 36 are deceased, 30 have insufficient data, and 5
have been excluded for incorrect diagnosis. Male:female ratio is 1.07:1. Median age at presentation is 8
weeks (range is birth to 6 years). 93% of the DBAR patients present during the first year. Median age at
diagnosis is 12 weeks (range is birth to 26 years). This doesn't include "non-classical" cases.

Distribution by birth year:

a.. 1949-1967: median 2.0 +/- 1.2 cases/year
b.. 1968-1977: 5.5 +/- 2.2
c.. 1978-1987: 11.0 +/-3.6
d.. 1988-1997: 17.0 +/-3.6
e.. 1998-2004: 8.0 +/-1.1

20-40 new cases per year are expected. [There statistically should be about 600 cases in North America.]

" Balance
between mind
and body is
what allows us
to achieve the
most in lives.
Never lose the
balance and
you will always
hold the focus
needed to
achieve your
toughest
goals."
-Samuel K.
Aidoo-