| Useful Websites |
 |  |  |  |  |
| Diamond Blackfan Anemia Foundation Inc. http://dbafoundation.org Diamond Blackfan http://diamondblackfan.com |
| Dr. Blanche Alter located at the National Institute of Health Bethesda, MD Dr. Alter’s phone: 301-594-7642 Website: www.marrowfailure.cancer.gov E-mail: alterb@mail.nih.gov N.I.H. Website: http://www.nih.gov/ |
| National Heart Lung and Blood Institute Dr. Elizabeth Kang and Dr. Cynthia Dunbar Dr. Kang’s phone: 301-402-7567 (good for treatment info. For DBA) Kang’s E-mail: Clinical Coordinator for the studies: Carole Webb: webbcc@nhlbi.nih.gov |
| Dr. Colin Sieff at Harvard’s Dana Farber Cancer Institute (also knows Dr. Antin who is a transplant hematologist) in Boston, MA Dr. Antin successfully cured one DBA patient with a "mini" bone marrow transplant with an unrelated donor! Dr. Sieff’s phone: 617-632-3531 Dr. Sieff’s E-mail: colin_sieff@dfci.harvard.edu Dr. Sieff's website: http://www.dfci.harvard. edu/abo/danafarber/detail.asp?PersonID=209&RD=True Dr. Antin’s E-mail: joseph_antin@dfci.harvard.edu Website: http://www.dfci.harvard. edu/abo/danafarber/detail.asp?personID=7 |
| DBA.UK 26 Arthur Road Horsham West Sussex, RH13 5BQ United Kingdom Tel: +44 1403 274686 Fax: +44 1403 274687 Email: NA Internet: http://www.diamondblackfan.org.uk |
| NIH/National Heart, Lung and Blood Institute 31 Center Drive MSC 2480 Building 31A Rm 4A16 Bethesda, MD 20892-2480 Tel: (301)592-8573 Fax: (301)480-4907 Email: nhlbiinfo@rover.nhlbi.nih.gov Internet: http://www.nhlbi.nih.gov/ |