| Diamond Blackfan Anemia and You (this site is under construction) |
| Welcome to Diamond Blackfan Anemia and You ! This site is dedicated to helping educate people about this rare blood disorder and topics that are often associated with not only individuals with DBA, but their friends and families as well. I hope you find this site beneficial and if you ever find something you think should be posted here or if you see a mistake (everyone makes them), please let me know and it will I will take care of it as soon as possible. Also, Please be aware that this site uses links from various sources for information about DBA and related disorders. All sources are credited and any mention of a specific product, company, or organization, website, or URL address, does not imply a recommendation or endorsement by this site. This site is for informational and educational purposes only and is not intended to provide or be a substitute for professional medical advice, diagnosis, or treatment. Comments posted to this site reflect the ideas and opinions of those posting and not the website author. *Please note this site is not owned or run by the DBA Foundation* |
| Adobe Reader is necessary to view several of the pages in this site. If you don't have it, download it for free here: |
| Announcements and News DBA Fundraiser: Cook for a Cure The menu |
| Journal of Blood article regarding DBA and Desferal/Deferiprone Help Fill the Diamond !!! Click on the Diamond for more information -See the notes taken at Camp Sunshine Twins with DBA- American Red Cross -Free Stem Cell Transplant for HLA matched DBA patients!!! -The Bell Family Makes DBA National News in USA Today!!! Read the new warning for those taking Exjade |
| Child Actress Dakota Fanning autographs the novel Charlotte's Web by E.B. White to help raise funds for the DBA Foundation! Click on her picture for more information |
Dr. Vlachos and Dr. Lipton need your help! In order to continue their studies of Diamond Blackfan Anemia they need to have 40-50 more DBA patients to donate samples of their blood! Click here for more information |
| Learn about Donating Blood: Click below |
| Meet others with DBA at Camp Sunshine Click below |
| MUMS: A Parent to Parent Network- Look under Blackfan |
| Printable Brochures: Diamond Blackfan Anemia: From the DBA Foundation DBA in Espanol |
| "Hope is the companion of power, and mother of success; for who so hopes strongly has within him the gift of miracles." - Samuel Smiles- |
| Have a comment or a suggestions? Sign the guest book or e-mail me |
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| If you can spare a dime, please donate to keep this site running. All donations are credited on this site. E-mail me at admin@diamondblackfananemia.com |
| I dedicate this site to my wonderful husband Jamaal and to all of the people affected by D.B.A. by either having it or knowing someone who does. Sometimes information and sharing can be the greatest weapon to finding a cure or making things more manageable . Peace, Faith, and Hope to Everyone!!!! Created May 2005 |
| Thanks to those who have sponsored this site to keep it running: John P. Bell Family Foundation The Broadhurst Family of New Jersey Vanessa, Kennon, and Sinclare The Stoeckle Family of Washington State |
| This site was late updated on :August 6, 2007 |